Cystic Fibrosis

HomePatientsLung Disease Week at the ATS2011Cystic Fibrosis ▶ Information for Patients
Information for Patients

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Newborn Screening: Info for New Parents

Information for parents whose newborn had a positive screen for CF and need further diagnostic testing.

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Testing for Cystic Fibrosis

Information related to diagnostic testing, newborn screening and CFTR related metabolic syndrome.

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Care Center Network

This section provides a search tool for people with CF to find the closest CF Foundation-accredited care center as well as the Patient Registry Report, Care Center Data related to CF health outcomes and quality improvement work within the CF Foundation-accredited care center network.

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Living with Cystic Fibrosis

Information on where people can find CF Foundation-accredited care centers across the United States, as well as information related to insurance, and assistance programs.

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Staying Healthy

Information for people with CF and families to stay health while living with CF. This includes information about diet, germs and lung health.

More info here

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CF Education Webcasts

Archived Webcasts featuring national experts in CF care related to germs, nutrition, lungs, partnering with the healthcare professionals for improvement, insurance, CF research and more.

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Therapies

Descriptions of the different respiratory and nutrition therapies, including medications, and why they are important in keeping people with CF healthy.

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CF Care Guidelines

This is a listing of the published, evidence-based CF care guidelines, with corresponding education information for people with CF and families, related to diagnosis, nutrition, GI, respiratory, infection control, age-specific care and more.

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Lung Transplantation

Frequently asked questions related to lung transplantation for people with CF.

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About Clinical Trials

A resource for people with CF who are interested in learning about clinical trials for CF, what questions to ask, videos of others with CF and their experience in clinical trials and frequently asked questions related to the results of recent clinical trials.

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Find a Clinical Trial

Find out about clinical trials in your area by using the CF Foundation’s clinical trial search tool.

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Get Involved

This is a resource of ways that people with CF, family and friends can get involved in helping to control CF and find a cure.

Advocacy

Improve Your CF Care

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 ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Click here for chapter on Cystic Fibrosis

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.

See list of Patient Information Series here