Cystic Fibrosis

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Information for Patients

Cystic Fibrosis Week at the ATS 2012

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Newborn Screening: Info for New Parents

Provide information for parents whose newborn had a positive screen for CF and need further diagnostic testing.

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Testing for Cystic Fibrosis

Information related to diagnostic testing, newborn screening and CFTR related metabolic syndrome.

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Care Center Network

This section provides a search tool for people with CF to find the closest CF Foundation-accredited care center as well as the Patient Registry Report, Care Center Data related to CF health outcomes and quality improvement work within the CF Foundation-accredited care center network.

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Living with Cystic Fibrosis

People can find CF Foundation-accredited care centers across the United States, as well as information related to insurance, and assistance programs.

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Staying Healthy

Information for people with CF and families to stay health while living with CF. This site includes information about diet, germs and lung health.

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CF Education Webcasts

Archived Webcasts featuring national experts in CF care related to germs, nutrition, lungs, partnering with the healthcare professionals for improvement, insurance, CF research and more.

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Therapies

Descriptions of the different respiratory and nutrition therapies, including medications, and why they are important in keeping people with CF healthy.

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CF Care Guidelines

Listing of the published, evidence-based CF care guidelines, with corresponding education information for people with CF and families, related to diagnosis, nutrition, GI, respiratory, infection control, age-specific care and more.

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Lung Transplantation

Frequently asked questions related to lung transplantation for people with CF.

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Get Involved

A resource of ways that people with CF, family, and friends can get involved in helping to control CF and find a cure.

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About Clinical Trials

Resource for people with CF interested in learning about clinical trials for CF, what questions to ask, videos of others with CF and their experience in clinical trials and frequently asked questions related to the results of recent clinical trials.

 Click Here

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ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Click here for chapter on Cystic Fibrosis.

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Find a Clinical Trial

Find out about clinical trials in your area by using the CF Foundation’s clinical trial search tool.

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.

Click here for more information.

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Advocacy: Your Voice for CF in Congress

A toolkit for how to advocate for CF with congress and state representatives.

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Improve Your CF Care

Ways to partner with the CF Foundation-accredited care center health professionals for quality improvement.

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ATS Statements, Guidelines and Reports

ATS Statements, Guidelines and Reports are printed in the American Journal of Respiratory and Critical Care Medicine. These documents are also available in PDF format. You may download one copy of any ATS document; there is no charge for this service. For examples, please Click Here.