chILD

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Information for Patients

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What is chILD?

Children's Interstitial Lung Disease (chILD) is not a single disease. Instead, it is a group of rare lung diseases found in infants, children, and adolescents.

More information here

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Information for Families

Information for families who may have a child newly diagnosed. Find your way with the guidance and support of others families who may have experienced the highs and lows that you will experience.

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When You Travel

You might want to find a hospital and doctor (hopefully a pediatric pulmonologist) in the place where you are going. You might want to find a pharmacy. Make sure they accept out-of-state prescriptions

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About Oxygen

There are a few options available for oxygen sources to use in your home. Your chILD’s oxygen needs, your insurance provider, and local availability will determine which you will have available.

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Living with chILD

Different forms of chILD require different treatments and support. The goal of treatment for chILD is to relieve symptoms, provide support to maximize growth and development, and to prevent exposure to preventable illnesses that could make the chILD syndrome worse

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Feeding Babies and Older Children

Breast milk is a good diet for the patient because it contains highly digestible nutrients and increases immunity to infection.

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Transplantation

Transplants are not cures. With a transplant you are trading your old health challenges for new ones, at best. Info on transplantation

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Information on Specific chILD
Disorders

Acute Interstitial Pneumonia
Alveolar Capillary Dysplasia
Aspiration Syndromes
Bronchiolitis Obliterans
Neuroendocrine Hyperplasia of Infancy
Pulmonary Interstitial Glycogenosis
Surfactant Deficiency

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chILD Clinical Centers

List of centers throughout the United States that have specialists and programs for chILD disorders.

Access the list here.

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ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for Chapter on Interstitial Lung Diseases.

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.