LAM

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Information for Patients

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Medical Providers
Information on LAM for medical providers.

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LAM Clinics

Strategically positioned based on the number of patients in a geographic area and combined with physicians who have an interest in LAM at institutions who value research in rare diseases.  Click here for a full list of LAM clinics in the United States.

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LAM Research Opportunities

Information on how LAM patients can participate in LAM research.

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The LAM Foundation Research Program

Information on The LAM Foundation’s research program.
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LAM Research Conference

Information on the 2012 LAM Foundation International Research Conference
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Supplemental Oxygen

Tips for using supplemental oxygen.  Click here for more info

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Treating LAM
Information on a number of treatments that may relieve symptoms or prevent complications from the disease.  Click here for more.

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Clinical Trials
For more information on LAM clinical trials click here.

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Pulmonary Rehabilitation
Almost all women with LAM have difficulty breathing.  But each woman who exercises—no matter how little she exercises—feels better (maybe not immediately, but in the long run) for doing so. Doctors have seen great results in women who exercise

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ATS “Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for chapter on rare lung diseases such as LAM.
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ATS Patient Information Series

The ATS Patient Information Series and Patient Health Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in these series are for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider. — Lymphangioleiomyomatosis (LAM)
Pulmonary Rehabilitation
Shortness of Breath

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Lung Transplantation

Information for LAM patients on weighing the risks and benefits of lung transplantation.

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Lung Collapse (Pneumothorax)

A pneumothorax — or lung collapse — is a leakage of air (pneumo) from a lung into the chest cavity (thorax).  Click here for more info