Pulmonary Hypertension

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Information for Patients

Pulmonary Hypertension Week at the ATS 2012

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Empowered Patient Toolkit

Keep track of your essential medical information with this PH “online medical binder” to download or print out.

Click Here

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Sometimes itsPH campaign

Misdiagnosis is the biggest barrier to better PH care. PHA’s Sometimes it’s PH campaign fights back with education, information, and patients’ misdiagnosis stories.

Click here to read more.

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One-minute early diagnosis video

­The symbol of PHA’s Sometimes it’s PH campaign is a zebra.  Find out why in this video spot you can share through social media.

Click Here

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Find a Doctor Directory

Research care with this listing of information provided by members of PHA’s professional network, PH Physicians and Researchers.

More Info

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Psychosocial materials

The physical impact of PH can affect a patient and family emotionally, socially and spiritually, too.  This series of downloadable PDF guides will help you cope. 

More Info

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Pediatric Resources for Families

­Find support and information in two free packets, one for family and friends, and the other for children and teens with PH.

Click Here

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Online Insurance Guide

­Advocate for insurance coverage of PH care for yourself or your patient using these resources on patients’ rights, working with insurance providers, finding financial assistance and more.

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PHA Online University

For medical professionals, PHA’s newly redesigned hub of education and networking for offers free continuing education courses, live webinars, and discussion among colleagues worldwide

Click Here

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Webinars and Videos for Patients, Families and Caregivers

PHA Classroom is an e-learning center with classes about medical and lifestyle issues and participation in the PH community. Join upcoming live events or watch a wealth of recorded sessions at your convenience.

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Pulmonary Hypertension: A Patient’s Survival Guide

PHA’s comprehensive 330-page guide to managing life with PH is updated each year. This book covers diagnosis treatment, nutrition, mental health, caregiving, doctor-patient relationships, insurance, health emergencies and more.

Click Here

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ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Click here for chapter on Pulmonary Hypertension

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.

Pulmonary Hypertension

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Support Groups and Services

You are not alone if you have PH.  Talking to others facing this illness ends isolation and builds hope.  PHA allows you options to connect on the web, by phone, or in face-to-face support group meetings.

More Info

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Online News from PHA

Follow PHA on Facebook or Twitter, receive our bi-weekly PHA News or subscribe to The Daily Beat for updates Monday through Friday.

Facebook: Click Here
Twitter:  Click Here
PHA News:  Click Here
The Daily Beat:  Click Here

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Caregiver Information

Learn about ways to best care for your loved one without neglecting your own need.

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Patient Stories

Discover hope and a sense of community in these personal stories reflecting the challenges and victories of many PH patients.

Click Here


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ATS Statements, Guidelines and Reports

ATS Statements, Guidelines and Reports are printed in the American Journal of Respiratory and Critical Care Medicine. These documents are also available in PDF format. You may download one copy of any ATS document; there is no charge for this service.