Rare Lung Disease

HomePatientsLung Disease Week at the ATS2012Rare Lung Disease ▶ Information for Patients
Information for Patients


HPS Patient Stories
HPS members’ stories.
For more information click here

HPS Members Photos
Click here to see HPS member photos

HPS Videos
See the video "HPS 101 - An Introduction to Hermansky-Pudlak Syndrome." In this short video Dr. Samuel Seward answers some basic questions about HPS. Click here

Clinical Trials Info
Clinical trials are medical research studies in which people participate as volunteers and are one way of developing new treatments and medications for rare diseases like HPS. Click here for more information.

ATS Patient Information Series -
What is Hermansky-Pudlak Syndrome
The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of

one’s personal health care provider.
To access this document click here

ATS "Breathing in America" book
The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.
For Chapter on Rare Lung Diseases Click here

HPS Educational Resources 
Find validated HPS education resources for patients of all ages

New Academic Papers