ARDS

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Information for Patients

ARDS

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ARDS Scholarship Information

The ARDS Foundation funds an advanced degree nursing scholarship to honor the memory of Marybeth Monaghen.  Marybeth was the sister of Paula Blonski, who is the Co-Founder of the ARDS Foundation. Marybeth was a nurse, and it is important to her family that others will benefit and receive monetary help if they are pursuing an advanced nursing degree.

More information here

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Children and ARDS

Communicating with a critically ill patient is extremely important; this is especially true when that patient is a child because a child cannot comprehend why they have become so ill and the last thing one would want them to believe is that they have done something to have made this happen to them, that they deserve to be this ill. It is crucial to communicate that they have not caused the ARDS, that it is not their fault.

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Foundation Views

Articles written by ARDS Foundation members about various aspects of their experience as patient, or family member.

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One Year Outcomes for ARDS Survivors

“Incidence and Outcomes of Acute Lung Injury” is a study that demonstrates that virtually all ARDS survivors suffer from some degree of muscle wasting and weakness following their ICU stay and that this continues to one year after discharge and perhaps longer.

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Information About Dyspnea

The experience of not being able to breathe is very unpleasant and can be frightening. The sensation that something is wrong with your breathing is termed 'shortness of breath' or 'dyspnea.' This webpage, and accompanying link to the Dyspnea Center, offers information and articles on this important medical condition.

Click here for more info

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ARDS and Sepsis

Sepsis-associated ARDS carries the highest mortality rates and also strikes over one-third of those who have ARDS. Therefore, ARDS Foundation felt the subject was important enough to publish a brochure addressing the relationship between ARDS and Sepsis.

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Short Interviews with ARDS Survivors

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1001 Loving Ways to Help a Patient, Family, or Caregiver

Some helpful suggestions for if you would like to help someone afflicted with ARDS or their families

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Long Term Acute Care Facilities (Inpatient Rehabilitation)

The ARDS Foundation has compiled a list of long term acute care facilities located throughout the United States.

Click here for more info.

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Prone Therapy

Studies have shown that placing patients in the prone position helps.

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Incidence and Outcome of Acute Lung Injury

Despite recent advances in our understanding of the mechanism and treatment of acute lung injury, its incidence and outcomes in the United States have been unclear.

Read more.

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X-Rays of Lungs affected with ARDS

Because the ARDS Foundation realizes that people have a difficult time conceptualizing how quickly a patient become so critically ill when acute respiratory distress syndrome strikes, we felt it was important to illustrate this fact. To simply state that it is between twenty-four to forty-eight hours never seems to properly impress upon people just how quickly ARDS moves.

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Patient Stories

Click here for links to ARDS survivor stories.

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Media and Social Media

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ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Click here for Chapter on Acute Respiratory Distress Syndrome.

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.

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Inpatient Rehab Questions

This list was compiled by a group of ARDS survivors and family members, as well as medical professionals who either have personally experienced rehabilitation facilities themselves, or have worked at rehabilitation facilities.

Click here for more.

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Long Term Acute Care Facilities

The ARDS Foundation has compiled a list of long term acute care facilities located throughout the United States. This list is not a representation of the total number of facilities.

Click here to access the list.