chILD

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Information for Patients

chILD Week

Lung Information for Patients

  • What is chILD?

    • Children's Interstitial Lung Disease (chILD) is not a single disease. Instead, it is a group of rare lung diseases found in infants, children, and adolescents.

  • Information for Families

    • Information for families who may have a child newly diagnosed. Find your way with the guidance and support of others families who may have experienced the highs and lows that you will experience.

  • When You Travel

    • You might want to find a hospital and doctor (hopefully a pediatric pulmonologist) in the place where you are going. You might want to find a pharmacy. Make sure they accept out-of-state prescriptions

  • About Oxygen

    • There are a few options available for oxygen sources to use in your home. Your chILD’s oxygen needs, your insurance provider, and local availability will determine which you will have available.

  • Living with chILD

    • Different forms of chILD require different treatments and support. The goal of treatment for chILD is to relieve symptoms, provide support to maximize growth and development, and to prevent exposure to preventable illnesses that could make the chILD syndrome worse.

  • Feeding Babies and Older Children

    • Breast milk is a good diet for the patient because it contains highly digestible nutrients and increases immunity to infection.

  • chILD Clinical Centers

    • List of centers throughout the United States that have specialists and programs for chILD disorders.

  • ATS Breathing in America Book

    • The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for chapter on Interstitial Lung Disease

  • Information on Specific chILD Disorders

  • ATS Patient Information Series

    • The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.

    • What is Interstitial Lung Disease in Children?