Cystic Fibrosis

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Cystic Fibrosis Week

Cystic Fibrosis Week

Welcome Message

Cystic fibrosis (CF) is the most common life-limiting inherited illness of Caucasians, affecting approximately 30,000 people in the U.S. CF is characterized by chronic lung, sinus, and gastrointestinal disease, with lung disease as the cause of mortality in the majority of CF patients. Though CF is a rare disease, myriad advances have been made in the care and treatment of CF patients thanks to strong partnerships among patients, families, physicians, research scientists, and industry. These advances, which include new therapies directly targeting the defective ion channel (the abnormality that leads to the pathology of CF) have made CF research and care a model for other chronic illnesses.

The American Thoracic Society (ATS) has a long-standing commitment to funding research and promoting awareness of CF lung disease. Results of studies in CF, from basic cell research to large clinical trials, from nursing interventions to novel nutritional programs, are presented annually at the ATS conference, and often benefit directly from ATS funding. Further, the ATS sponsors working groups focused on specific aspects of CF lung disease or treatment. By dedicating a week at the ATS focused on Cystic Fibrosis, we hope to engage the public and press, as well as the patients, families, medical teams, and scientists, to promote awareness and understanding of CF lung disease, highlight exciting novel studies, and promote enthusiasm for all of the research currently being conducted and those that still need to be completed.

 

Stephanie Davis, MD

Stephanie Davis, MD
Professor of Pediatrics
Riley Hospital for Children at IU Health
ATS Member

Beth Sufian, JD

Beth Sufian, JD
Director, CF Legal Information Hotline
Cystic Fibrosis Foundation
Member, ATS Public Advisory Roundtable

Jessica Pittman, MD, MPH

Jessica Pittman, MD, MPH
Assistant Professor, Pediatrics
Director, Pediatric Pulmonary Function
Washington University School of Medicine
ATS Member