Cystic Fibrosis

HomePatientsLung Disease Week at the ATS2016Cystic Fibrosis ▶ Information for Patients
Information for Patients

Cystic Fibrosis Week

Lung Information for Patients

Newborn Screening: Info for New Parents

Provides information for parents whose newborn had a positive screen for CF and need further diagnostic testing.

Testing for Cystic Fibrosis

Provides information related to diagnostic testing, newborn screening and CFTR related metabolic syndrome.

Care Center Network

This section provides a search tool for people with CF to find the closest CF Foundation-accredited care center as well as the Patient Registry Report, Care Center Data related to CF health outcomes and quality improvement work within the CF Foundation-accredited care center network.

Living with Cystic Fibrosis

This section provides information on how to stay healthy with CF and balance a life with the disease at work and school. This section also includes information on lung health and nutrition.

Drug Development Pipeline

An interactive online pipeline that provides information on CF Foundation-supported therapies in development and those already in use by people with CF.

Patient Assistance Resource Center

This section helps people with CF get the insurance coverage they need to keep their CF treatments and health on track, provides assistance to help patients afford medications and devices and offers information on insurance options and eligibility, employment issues and school laws.

Therapies

This section offers information on different CF drugs and treatments, including antibiotics, airway clearance techniques and nutrition for all ages.

CF Care Guidelines

Listing of evidence-based CF care guidelines, with corresponding education information for people with CF and families on topics including diagnosis, nutrition, GI, respiratory and infection control.

Lung Transplantation

Answers to frequently asked questions related to lung transplantation for people with CF.

Get Involved

This section offers a number of ways that people with CF, families and friends can get involved in helping to find a cure for CF and raise awareness of the disease, including advocating for the rights of people with CF by reaching out to elected officials and taking part a variety of CF Foundation fundraising events.

About Clinical Trials

This section provides information for people with CF who are interested in learning about clinical trials for CF and offers a clinical trials search tool to help people with CF find trials in their area.

ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.