Sarcoidosis

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Sarcoidosis Week

Sarcoidosis Week

Welcome to Sarcoidosis awareness week!

Sarcoidosis is a chronic inflammatory disease that occurs primarily in the lungs but can affect any organ in the body.  In 1991 Congress declared April 29, Sarcoidosis Awareness Day, and in 2008 it declared April as Sarcoidosis Awareness Month, to increase awareness of the disease. Sarcoidosis affects people of all racial and ethnic groups and occurs at all ages, although it generally develops before the age of 50 with the incidence peaking between ages 20-39 years old.  The cause remains unknown but based on all available research it appears to be a combination of genetic and environmental factors. 

The disease itself can range from being asymptomatic resolving on its own to a severe, systemic disease that can lead to death. While Sarcoidosis can affect any organ in the body it is most commonly seen in the lungs and for patients who are symptomatic the most common symptoms are shortness of breath and cough. Other symptoms which generally indicate the involvement of other organs include weight loss, night sweats, fatigue, palpitations, swollen legs, rash, visual changes such as blurry vision, stroke symptoms such as weakness in an arm or numbness, and fever.

Diagnosis is typically based on symptoms and a variety of tests that may include a biopsy of the affected organ.  While treatment is available there is no real cure. Treatment can be protracted and frustrating depending on the response to medications and the extent of the disease. It is important to remain as active as possible, maintaining a good balanced diet, minimizing stress and getting adequate rest.

The American Thoracic Society and the Foundation for Sarcoidosis Research have partnered to engage and support clinicians, scientific investigators and patients to promote sarcoidosis research, education and advocacy. Our goal is to increase awareness among patients, families, friends and clinicians regarding current state of the art in presentation, diagnosis and treatment.  We also seek to encourage and support research addressing causes, novel therapies and prevention of Sarcoidosis.

 

Yolanda Mageto, MD, MPH

Yolanda Mageto, MD, MPH  
Associate Professor of Pulmonary Medicine
University of Vermont College of Medicine
Member, American Thoracic Society

 

Ginger Spitzer

Ginger Spitzer
Executive Director
Foundation for Sarcoidosis Research
Member, ATS Public Advisory Roundtable

 

 

ATS Sarcoidosis PARtner
Foundation for Sarcoidosis Research

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The Foundation for Sarcoidosis Research (FSR) is the nation's leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, FSR has funded numerous domestic and international research efforts and has worked diligently to provide resources to thousands. FSR provides funding and collaborations for research and initiatives which focus on the understanding of sarcoidosis, addresses the causes of the disease, counters the suffering of patients, and advances the potential for a cure.