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Improving Long-Term Outcomes Research for Acute Respiratory Failure

This NIH-funded project is focused on creating free resources to assist investigators conducting longitudinal clinical research studies. There are many resources available through the project’s website (www.improveLTO.com) in the following areas:

  1. a database of common patient-reported and performance-based outcome measures for evaluating physical, cognitive, mental health, and quality of life, along with standardized information about these outcome measures;

  2. adaptable tools, templates, and manuals to reduce loss to follow-up of research participants, including an interactive searchable database of >600 retention strategies; and

  3. a statistical tool to address the “competing risk of mortality” when evaluating functional outcomes.

Last Reviewed: March 2017