chILD

HomePatientsLung Disease Week at the ATS2011chILD ▶ Information for Patients
Information for Patients

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Get Up and Go with chILD!

This is a 60 page booklet comprehensive guide for patients and their families.

Click here for more info.

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ChILD Support Group

Children's Interstitial Lung Disease or (chILD) Parent Support Group was set up for those families dealing with this rare lung disease.

Click here to access

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chILD Clinical Centers

A dedicated group of physicians that have formed a chILD Research Network. In order to be listed as a center, they must have an experienced multi-disciplinary group available to meet the needs of chILD patients.

Click here for more

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Diagnosis and Disease info

Diagnosis and disease information

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Airline Travel with Oxygen

One of the challenges facing families with children on oxygen is the lack of approved pediatric oxygen delivery systems.

 More info here

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Feeding Support

For kids who require feeding tubes, this is some general information on the types of feeding tubes and facilities that help treat oral aversions and feeding issues

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Helpful Medical Supplies

Good information on supplies that are useful for care of kids with chILD

More here

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Home Oxygen Use

Information on Portable Oxygen Concentrators (POCs) and other related medical equipment

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Gastroesophageal Reflux Disease (GERD)

Many patients living with chILD have complications including gastroesophogeal reflux (GERD), failure to thrive, and eating problems. See a compilation of helpful resources here.

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Nutritional Support for chILD patients

For kids with “failure to thrive” or poor weight gain, here is a list of supplements other parents have tried and recommended

More here

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chILD Terminology

Glossary of chILD terms provided by:
families and specialists, the chILD Foundation, the Rare Lung Diseases Consortium, and the University of Alabama at Birmingham Pediatric Pulmonary Center

Click Here

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ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Click here for Chapter on Interstitial Lung Disease

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ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.

What is Interstitial Lung Disease in Children?

Pulmonary Function Testing in Children