Rare Lung Disease

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Information for Patients


HPS Patient Stories
HPS members’ stories.

For more information click here

HPS Members Photos

Click here to see HPS member photos

Clinical Trials Info

Clinical trials are medical research studies in which people participate as volunteers and are one way of developing new treatments and medications for rare diseases like HPS.

Click here for more information.

ATS Patient Information Series —
What is Hermansky-Pudlak Syndrome

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM.

The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.

To access this document click here

HPS Videos
See the video “HPS 101 – An Introduction to Hermansky-Pudlak Syndrome.” In this short video Dr. Samuel Seward answers some basic questions about HPS. Click here

ATS Breathing in America” book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

Chapter on Rare Lung Diseases

HPS Educational Resources 
Find validated HPS education resources for patients of all ages