Pulmonary Fibrosis

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Pulmonary Fibrosis Week at the ATS

pulmonary fibrosis week

Welcome Message

Welcome to this week's focused feature with our Public Advisory Roundtable (PAR) partners who care about Idiopathic Pulmonary Fibrosis (IPF). The timing of this posting is scheduled to coincide with Global Pulmonary Fibrosis Awareness Day on September 22, 2012.  This welcome is a celebration of all the organizations that have their heart in the right place to find a cure for this devastating disease. ATS PAR partner, the Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF). Also, the PAR Council of Public Representatives partner, the Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) nonprofit foundation whose mission is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community, and promote disease awareness on behalf of patients and their families. Both of these organizations have helped increase awareness for IPF by fostering research, consolidating expert opinion, advocating for early and specific diagnosis, and advancing communication.

As we all know, the hunt for an effective therapy to reverse progressive pulmonary fibrosis still continues. Until such a cure is found, both of these foundations share a mission to improve access to family educational resources and disease experts. Highlights of the programs for affected families include regional and local education and support programs, and scientific meetings to work for a cure. A biennial international health care conference will be held December 5-7, 2012 entitled PFF Summit: From Bench to Bedside that is targeted to physicians, researchers, registered nurses, allied health professionals, patients, and caregivers.

The ATS is proud of the collaborations made with our PAR partners in support of their mission to provide support, education and hope to families affected with IPF and to advocate and raise funds for scientific research.

strange

Charlie Strange, MD         
Chair, 
ATS Assembly on Clinical Problems
Member, ATS Board of Directors

barnes

Teresa Barnes
Chair,
ATS Public Advisory Roundtable
Member, ATS Board of Directors

ATS PULMONARY FIBROSIS PARTNER - CPF

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The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for pulmonary fibrosis (PF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure PF; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of PF issues; and works to improve awareness of PF in the medical community as well as the general public. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 25,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with PF.  

Disclaimer: "The ATS Lung Disease Week Web site is designed for educational purposes only. You should not rely on this information as a substitute for personal medical attention, a diagnosis from a physician, or direct medical care.  If you are concerned about your health or that of a family member, please consult your family's healthcare provider immediately. Do not wait for a response from our members, staff or partners."