In 2013, the ATS Public Advisory Roundtable (PAR) continues its successful program "Lung Disease Week at the ATS," which represents a society-wide initiative to recognize the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. For a series of one-week periods throughout 2013, ATS PAR will bring patient issues to the front and center of the Society's agenda. Working with its PAR partners, the ATS will develop, aggregate and host links to disease-specific content on its Web site. Material will include patient stories, testimonials, interviews, videos, photos, support group information, details on ongoing legislative efforts and clinical trial updates. The ATS will foster interaction between patients, clinicians and researchers by hosting online question-and-answer sessions, Webinars and/or podcasts featuring lung disease experts. See the full calendar of lung disease weeks below.
If you have any questions, please email cwhite@thoracic.org.
(February 17 – 23) — Rare Lung DiseasesPAR Member – Donna Appell (Hermansky–Pudlak) |
(March 10 – 16) — COPDPAR Member – Bill Clark (COPD Foundation) |
(April 7 – 13) — SarcoidosisPAR Member – Andrea Wilson (Foundation for Sarcoidosis Research) |
(April 28 – May 4) — Sleep DisordersPAR Member – Ed Grandi (American Sleep Apnea Association) |
(June 23–29) — ARDSPAR Member – Eileen Rubin (ARDS Foundation) |
(July 14–20) — Childhood ILDPAR Member – Greg Porta (chILD Foundation) |
(August 4–10) — Rare Lung Diseases IIPAR Member – Jack Kelly (Lymphangiomatosis & Gorham's Disease Alliance) |
(August 25–31) — SclerodermaPAR Member – Kerri Connolly (Scleroderma Foundation) |
(September 22 – 28) — Pulmonary FibrosisPAR Member – Teresa Barnes (Coalition for Pulmonary Fibrosis) (Also local onsite event) |
(October 13–19) — AsthmaPAR Member – Charlotte Collins (Asthma & Allergy Foundation of America) |
(November 3–9) — Lung CancerPAR Member – Regina Vidaver (National Lung Cancer Partnership) |
(November 24 – 30) — Pulmonary HypertensionPAR Member – Debbie Castro (Pulmonary Hypertension Association) |
(December 8–14) — Cystic FibrosisPAR Member – Beth Sufian (Cystic Fibrosis Foundation) ) (Also local onsite event) |