In 2014, the ATS Public Advisory Roundtable (PAR) continues its successful program "Lung Disease Week at the ATS," which represents a society-wide initiative to recognize the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. For a series of one-week periods throughout 2013, ATS PAR will bring patient issues to the front and center of the Society's agenda. Working with its PAR partners, the ATS will develop, aggregate and host links to disease-specific content on its Web site. Material will include patient stories, testimonials, interviews, videos, photos, support group information, details on ongoing legislative efforts and clinical trial updates. The ATS will foster interaction between patients, clinicians and researchers by hosting online question-and-answer sessions, Webinars and/or podcasts featuring lung disease experts. See the full calendar of lung disease weeks below.
If you have any questions, please email cwhite@thoracic.org.
Feb 9-15 — SarcoidosisPAR Member — Andrea Wilson (Foundation for Sarcoidosis Research) |
Mar 2-8 — Cystic FibrosisPAR Member — Beth Sufi an (Cystic Fibrosis Foundation) |
Apr 6-12 — ARDSPAR Member — Eileen Rubin (ARDS Foundation) |
Apr 20-26 — Sleep DisordersPAR Member — Ed Grandi (American Sleep Apnea Association) |
Jun1-7 — LAMPAR Member — Mary Harbaugh (The LAM Foundation) |
Jun 22-28 — SclerodermaPAR Member — Kerri Connolly (Scleroderma Foundation) |
July 6-12 — Pulmonary HypertensionPAR Member — Debbie Castro (Pulmonary Hypertension Association) |
Aug 3-9 — chILDPAR Member — Greg Porta (chILD Foundation) |
Aug 24-30 — Rare Lung DiseasesPAR Member — Jack Kelly (Lymphangiomatosis & Gorham’s Disease Alliance) |
Sep 7-13 — Lung TransplantPAR Member — Jeff Goldstein (Lung Transplant Foundation) |
Sep 21-27 — Pulmonary FibrosisPAR Member — Teresa Barnes (Coalition for Pulmonary Fibrosis) |
Oct 5-11 — AsthmaPAR Member — Charlotte Collins (Asthma & Allergy Foundation of America) |
Nov 9-15 — Rare Lung Disease IIPAR Member – Donna Appell (Hermansky Pudlak Syndrome Network) |