Information for Patients
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About Lymphangioleiomyomatosis
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Provides a description of LAM and its symptoms, method of diagnosis and the stages of LAM. There is also a listing of Milestones in discoveries about the research and treatment of LAM and the link between LAM and Tuberous Sclerosis (TSC).
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Living with LAM
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Information concerning the proper treatment of lung collapses, including the recommendations concerning surgical pleurodesis; the use of supplemental oxygen; pulmonary rehabilitation; conserving your energy; lung transplantation; and a listing and glossary of frequently encountered key terms and definitions
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Patient Resources
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Provides links to a variety of resources for patient support; publications for LAM patients, family and friends; and a link for registering with The LAM Foundation. There is contact information for the numerous US and International LAM Clinics who can provide treatment for women with LAM.
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Medical Providers
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This page contains information on the epidemiology, diagnosis, management and treatment of LAM for medical providers. Professional can use this online link or print out the information.
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LAM Research Opportunities
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You have an opportunity to participate in LAM research. There are currently several clinical trials and studies that are enrolling patients with LAM. Click here to see a description of the study, find contact information, and learn more about the study and how to enroll patients.
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ATS Breathing in America Book
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The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for Chapter on Acute Respiratory Distress Syndrome.
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ATS Patient Information Series
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The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider. - Acute Respiratory Distress Syndrome
- Mechanical Ventilation
- Chest Tube Thoracostomy
- Pulmonary Function Tests
- Central Venous Catheter
- Pulmonary Rehabilitation
- Research in the Intensive Care Unit
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