HomePatientsLung Disease Week at the ATS2015LAM ▶ Information for Patients
Information for Patients

LAM Week

Lung Information for Patients

  • About Lymphangioleiomyomatosis

    • Provides a description of LAM and its symptoms, method of diagnosis and the stages of LAM.  There is also a listing of Milestones in discoveries about the research and treatment of LAM and the link between LAM and Tuberous Sclerosis (TSC). 

  • Living with LAM

    • Information concerning the proper treatment of lung collapses, including the recommendations concerning surgical pleurodesis; the use of supplemental oxygen; pulmonary rehabilitation; conserving your energy; lung transplantation; and a listing and glossary of frequently encountered key terms and definitions

  • Patient Resources

    • Provides links to a variety of resources for patient support; publications for LAM patients, family and friends; and a link for registering with The LAM Foundation.  There is contact information for the numerous US and International LAM Clinics who can provide treatment for women with LAM.

  • Medical Providers

    • This page contains information on the epidemiology, diagnosis, management and treatment of LAM for medical providers. Professional can use this online link or print out the information.

  • LAM Research Opportunities

    • You have an opportunity to participate in LAM research.  There are currently several clinical trials and studies that are enrolling patients with LAM.  Click here to see a description of the study, find contact information, and learn more about the study and how to enroll patients.

  • ATS Breathing in America Book

    • The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for Chapter on Acute Respiratory Distress Syndrome.

  • ATS Patient Information Series