Pulmonary Hypertension

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Information for Patients

Pulmonary Hypertension

Lung Information for Patients

  • About Pulmonary Hypertension

    • Learn the basics about pulmonary hypertension, diagnosis and treatment.
  • Find a Pulmonary Hypertension Doctor

    • Use PHA’s Find a Doctor Directory to identify doctors with the expertise and resources necessary to diagnose and manage pulmonary hypertension.
  • PH Care Centers

    • The PH Care Centers initiative of the Pulmonary Hypertension Association seeks to identify Centers with expertise in pulmonary hypertension that have demonstrated an ability to properly diagnose the disease and have the capability to manage these complex patients. Access a list of PHA-accredited PH centers at the link above.
  • Living with Pulmonary Hypertension

    • Find tips, tools and resources to help you work, travel, exercise and do the things you loved before diagnosis
  • Webinars and Videos

    • PHA Classroom is a robust e-learning center for patients and caregivers with classes about medical and lifestyle issues and ways to fight back. You can participate in upcoming live events or watch recordings at your leisure
  • Pulmonary Hypertension: A Patient’s Survival Guide

    • Our 330-page guide to understanding and coping with PH. Originally written by a patient, this book is now in its 5th Edition and is updated annually by a team of patients and medical professionals
  • ATS Breathing in America Book

    • The Breathing in America Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for Chapter on PH
  • ATS Patient Information Series

    • The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.
    • Pulmonary Hypertension
  • Support Groups and Services

    • Many people living with PH find that connecting with other patients and caregivers provides much-needed encouragement and hope. From local support groups to online communities to one-on-one phone and email support, PHA offers a range of support programs to meet the diverse needs of the PH community
  • Treatment Fact Sheets

    • Learn about the FDA-approved pulmonary hypertension treatments through these Treatment Fact Sheets, written and approved by PHA’s Scientific Leadership Council
  • Caregivers

    • Webinars, support groups and educational materials for family members and friends of PH patients, including resources for parents of children with PH
  • Associated Diseases

    • Learn about diseases associated with PH, including HIV, sickle cell disease, scleroderma, liver disease and more.
  • Treatment Access / Specialty Pharmacy Feedback

    • Learn about navigating insurance options and obstacles. Provide feedback to the specialty pharmacy that delivers your pulmonary hypertension medication
  • Get Involved

    • PHA believes that every person whose life has been touched by PH has the right to fight back as much or as little as their health and interest allow. Explore our advocacy, awareness, fundraising and volunteer programs to become a part of our movement to find a cure for PH
  • Keep in Touch!

    • Follow the Pulmonary Hypertension Association on Facebook and Twitter or subscribe to PHANews.