Tuberous Sclerosis

HomePatientsLung Disease Week at the ATS2015Tuberous Sclerosis ▶ Information for Patients
Information for Patients

Tuberous Sclerosis

Lung Information for Patients

  • Patient Resources

    • The Tuberous Sclerosis Alliance website offers a wealth of information and resources for patients and their caregivers, healthcare providers and researchers.
  • How is Tuberous Sclerosis Complex Diagnosed?

    • Clinical features of Tuberous Sclerosis continue to be a principal means of diagnosis but include additional clarification and simplification. In addition, Tuberous Sclerosis may now be diagnosed via genetic testing.
  • For the Newly Diagnosed

    • If someone in you know has been recently diagnosed with Tuberous Sclerosis Complex, the Tuberous Sclerosis Alliance is here to help.
  • Community Alliances

    • More than 30 volunteer-drive Community Alliances across the United States offer people with Tuberous Sclerosis local support and resources.
  • Tuberous Sclerosis Clinics

    • The Tuberous Sclerosis Alliance recognizes 47 TSC Clinics in the United States and two in Israel. List of clinics here.
  • Clinical Trials

    • Tuberous Sclerosis research is critical for identifying new treatments and to pursue a cure. This page provides a list of current clinic trials and links to an introduction to clinical trials.
  • Medical Providers

    • Tuberous Sclerosis Complex may affect nearly every organ system, but disease manifestations vary widely among affected individuals and some can be life threatening. This page provides a brief summary of the latest consensus recommendations for monitoring and treating individuals with Tuberous Sclerosis.