HomePatientsLung Disease Week at the ATS2017LAM ▶ Information for Patients
Information for Patients

LAM Week

Lung Information for Patients

About Lymphangioleiomyomatosis

Provides a description of LAM and its symptoms, method of diagnosis and the stages of LAM.  There is also a listing of Milestones in discoveries about the research and treatment of LAM and the link between LAM and Tuberous Sclerosis (TSC). 

Living with LAM

Information concerning the proper treatment of lung collapses, including the recommendations concerning surgical pleurodesis; the use of supplemental oxygen; pulmonary rehabilitation; conserving your energy; lung transplantation; and a listing and glossary of frequently encountered key terms and definitions

Patient Resources

Provides links to a variety of resources for patient support; publications for LAM patients, family and friends; and a link for registering with The LAM Foundation.  There is contact information for the numerous US and International LAM Clinics who can provide treatment for women with LAM.

Medical Providers

This page contains information on the epidemiology, diagnosis, management and treatment of LAM for medical providers. Professionals can use this online link or print out the information.

LAM Research Opportunities

You have an opportunity to participate in LAM research.  There are currently several clinical trials and studies that are enrolling patients with LAM.  Click here to see a description of the study, find contact information, and learn more about the study and how to enroll patients.

ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for Chapter on Acute Respiratory Distress Syndrome.

ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one’s personal health care provider.