Throughout 2019, the ATS Public Advisory Roundtable (PAR) is hosting its ninth annual "Lung Disease Week at the ATS" series, a society-wide initiative that recognizes the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. For a series of one-week periods, ATS PAR brings patient issues to the front and center of the Society's agenda. Working with its PAR partners, the ATS develops, aggregates, and hosts links to disease-specific content on its web site.
Feb 3-9 — Nontuberculous MycobacteriaPAR Member — Susan Wisliceny (NTM Info & Research) |
Feb 17-22 — chILDPAR Member — Greg Porta (chILD Foundation) |
Mar 10-16 — Tuberous Sclerosis ComplexPAR Member — Kari Rosbeck (TS Alliance) |
Mar 31-Apr 6 —SarcoidosisPAR Member — Ginger Spitzer (Foundation for Sarcoidosis Research)ATS Leader — Melanie Koenigshoff, MD |
Apr 21-27—Hermansky Pudlak Syndrome*PAR Member — Donna Appell (HPS Network) |
Jun 9-15 —Lymphangioleiomyomatosis (LAM)PAR Member — Mary Harbaugh (LAM Foundation) |
Jun 23-29—SclerodermaPAR Member — Kerri Connolly (Scleroderma Foundation) |
Aug 4-10—Sleep DisordersPAR Member — Julie Flygare (Project Sleep) |
Aug 18-24 — Asthma/Allergy*PAR Member — Tonya Winders (Allergy & Asthma Network) |
Sep 8-14—Lung TransplantPAR Member — Jeff Goldstein (Lung Transplant Foundation) ATS Leader — Debra Boyer, MD |
Sep 22-28 —Pulmonary FibrosisPAR Member — Jennifer Mefford (Pulm. Fibrosis Foundation) ATS Leader — Beth Moore, PhD |
Oct 6-12—Primary Ciliary Dyskinesia*PAR Member — Michele Manion (PCD Foundation) |
Nov 10-16—ARDS*PAR Member — Susan East (ARDS Foundation) |
* Will also include an in-the-field patient education day event
For more information on Lung Disease Week at the ATS, please contact Courtney L. White, CAE, Director of Patient Outreach & Tobacco Control at cwhite@thoracic.org or (212) 315-8640.
