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Patient and Family Education Committee

Chair Jean-Marie Bruzzese, PhD New York, NY
Vice Chair Vidya Krishnan, MD, MHS Cleveland, OH
Committee Member Patrick G. Belvitch, MD Chicago, IL
Committee Member Bruce G. Bender, PhD Denver, CO
Committee Member Catherine Chen, MD Dallas, TX
Committee Member Maureen R. George, PhD, RN New York, NY
Committee Member Mary C. Kapella, PhD Chicago, IL
Committee Member Ann C. Long, MD, MS Seattle, WA
Committee Member - PAR Representative Michele Manion, BS Minneapolis, MN
Committee Member - PAR Representative Jennifer Mefford Chicago, IL
Committee Member Giora Netzer, MD Baltimore, MD
Committee Member Howard B. Panitch, MD Philadelphia, PA
Committee Member Marianna M. Sockrider, MD, DrPH Houston, TX
Committee Member - CCR Representative Angela C. Wang, MD La Jolla, CA
Staff Judy Corn New York, NY
Staff Kimberly Lawrence New York, NY

The Patient and Family Education Committee (PFEC) provides oversight for the design, implementation, and evaluation of the Society’s patient, family and lay public-oriented educational activities and products, including informational brochures and website materials. The Committee performs ongoing assessments of ATS patient/public educational resources to assure that they are relevant, current, health literate, and cost-effective. Based on these assessments, the Committee oversees the periodic development and modification of the Society's educational portfolio for patients and families and conducts periodic strategic planning aimed at continued improvement. It develops educational strategies to accelerate the translation of scientific discovery and knowledge to improve patient and family knowledge and skill about the prevention and treatment of pulmonary disease, critical illness, and sleep disorders. PFEC focuses on areas that improve clinician knowledge and attitudes for enhancing communication with patients and families, including topics such as health literacy, cultural competence, and use of patient and family educational materials in clinical practice. In addition, the Committee also explores ways to ensure that the patient and family perspective is incorporated into educational activities for ATS members and other professionals in the fields of pulmonary, critical care and sleep. The committee works closely with the Public Advisory Roundtable (PAR) to develop collaborative goals regarding patient and family education. It coordinates its efforts with multiple other committees and staff including the Clinicians’ Advisory Committee (CAC) the Education Committee, Documents Development and Implementation Committee (DDIC), Drug/Device Discovery and Development Committee (DDDD), Members in Transition and Training Committee (MITT), the Associate Medical Editor for Patient Education, and the ATS Website team.

Benchmarks, 2017-2018:
• Coordinate with the ATS marketing group and other committees to develop innovative communication strategies to disseminate patient and family education materials to clinicians, patients, families, and caregivers. This process will include evaluation of vendor proposals and ongoing monitoring of vendor collaborations aimed at this goal.

• Coordinate with the Documents Development and Implementation Committee the Patient Advisory Roundtable to implement a mechanism to include patient representatives for clinical practice guidelines who focus on access to care, health literacy and other disparity-related issues.

• Coordinate with the Members in Training and Transition Committee and assembly mentoring groups to better engage early career professionals in the process of creating and maintaining patient and gamily education resources.

• Collaborate with the Clinicians’ Advisory Group to better align Patient/Family Education resources with clinicians’ needs.

• Work with Drug/Device Discovery and Development Committee to update existing research-related patient materials or suggest new materials to fill unmet needs.

• Develop a strategy for creating and reviewing new types (e.g. decision aids) and new formats (audio/visual/apps) for patient and family educational materials.

• Develop the “Best of the Web” series and the bi-annual review of existing ATS patient and family educational materials.

• Evaluate methods to measure success of ATS patient and family educational materials beyond viewing of web pages, and assess awareness of materials among members.

• Determine the feasibility of expanding video-based information for patients with low literacy in collaboration with Public Advisory Roundtable groups.