Patient and Family Education Committee

Chair Vidya Krishnan, MD, MHS, ATSF Cleveland, OH
Vice Chair Doranne M. Donesky, PhD, ANP-BC, ATSF Napa, CA
Committee Member Carme Hernandez, RN, PhD, MSc Barcelona, Barcelona, Spain
Committee Member Catherine Chen, MD Dallas, TX
Committee Member Donald R. Sullivan, MD, MA, MRes Portland, OR
Committee Member - CCR Representative Fady G. Jamous, MD, ATSF Sioux Falls, SD
Committee Member Fahid Alghanim, MD PHILADELPHIA, PA
Committee Member Jean-Marie Bruzzese, PhD New York, NY
Committee Member Manvi Bansal Los Angeles, CA
Committee Member Maureen George, PhD, RN New York, NY
Committee Member - PAR Representative Siri Vaeth, MSW Palo Alto, CA
Committee Member Tirsa M. Ferrer Marrero, MD Milwaukee, WI
Observer - Ad-hoc Expert Marianna M. Sockrider, MD, DrPH, ATSF Houston, TX
Staff Judy Corn New York, NY
Staff Kimberly Lawrence New York, NY

The Patient and Family Education Committee (PFEC) provides oversight for the design,implementation, and evaluation of the Society’s patient, family and lay public‐oriented educational activities and products, including informational brochures and website materials.

The Committee performs ongoing assessments of ATS patient/public educational resources to assure that they are relevant, current, health literate, and cost‐effective. Based on these assessments, the Committee oversees the periodic development and modification of the Society's educational portfolio for patients and families and conducts periodic strategic planning aimed at continued improvement. It develops educational strategies to accelerate the translation of scientific discovery and knowledge to improve patient and family knowledge and skill about the prevention and treatment of pulmonary disease, critical illness, and sleep
disorders. PFEC focuses on areas that improve clinician knowledge and attitudes for enhancing communication with patients and families, including topics such as health literacy, cultural competence, and use of patient and family educational materials in clinical practice. In addition, the Committee also explores ways to ensure that the patient and family perspective is incorporated into educational activities for ATS members and other professionals in the fields of pulmonary, critical care and sleep.

The committee works closely with the Public Advisory Roundtable (PAR) to develop collaborative goals regarding patient and family education. It coordinates its efforts, whenever appropriate, with multiple other committees and staff including the Clinicians’ Advisory Committee (CAC), the Education Committee, Documents Development and Implementation Committee (DDIC), Drug/Device Discovery and Development Committee (DDDD), Health Equity and Diversity Committee, Members in Transition and Training Committee (MITT), the Associate Medical Editor for Patient Education, and the ATS Website team.

Benchmarks, 2021-2022:
• Develop a long-range plan to ensure that patient and family education resources are more consistent with current health literacy standards, including format, use of language, applicability to diverse target audiences (race, culture, religion, gender identity/sexual orientation, physical/mental health challenges etc.).

• Coordinate with various relevant assemblies and committees to develop new and update existing patient and family education materials, with emphasis on those related to COVID-19 (safe practices and vaccination),which require ongoing monitoring and updating

• Collaborate with the Clinicians Advisory Committee (or other clinical entity) and Digital Content Committee (formerly website committee) to identify the best home for clinically oriented "rapid response" documents. Compile the background for the working group.

• Collaborate with the Pulmonary Function Testing Committee to reach out to patients and
family to provide input on patient‐centered information about various types of pulmonary function testing.

• Collaborate with the Tobacco Action Committee, ATS website/social media, and other relevant committees, to update patient education materials.

• Continue to refine the strategy for creating and reviewing new types and new formats (audio/visual/apps) for patient and family educational materials.

• Conduct periodic assessments on the educational needs of patients/families/caregivers and develop plans to address these needs, to include creating new materials, updating materials, or marketing existing materials, in collaboration with other organizations as appropriate

• Implement a pilot project to evaluate the ICU guide in one center. If the project is successful, consider expanding to other centers.