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HomePatientsLung Disease Week at the ATS2020LAM ▶ Information for Patients
Information for Patients

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lungInformation for Patients

 

About Lymphangioleiomyomatosis

Provides a description of LAM, its symptoms, methods of diagnosis and the stages of LAM. 

ATS/JRS Clinical Practice Guidelines: Lymphangioleiomyomatosis Diagnosis and Management

The American Thoracic Society (ATS) and the Japanese Respiratory Society (JRS), in conjunction with an ad hoc guideline development committee of LAM experts, prepared the following guidelines for the treatment of lymphangioleiomyomatosis.

Living with LAM

Information concerning the proper treatment of lung collapses, including the recommendations concerning surgical pleurodesis; the use of supplemental oxygen; pulmonary rehabilitation; coping with your diagnosis; lung transplantation; and recommendations on vaccinations.

Patient Resources

Provides links to a variety of resources for patient support; ways that patients can connect with one another; ways to reach The LAM Foundation via social media; written resources; newsletters and much more.

Healthcare Providers

This page contains information on the epidemiology, diagnosis, management and treatment of LAM for medical providers. It also talks about research and treatment progress for the disease.

LAM Research Opportunities

Participating in research is extremely important for the continued progress of LAM research.  There are currently several clinical trials and studies that are enrolling patients with LAM.  Click here to see a description of the study, find contact information, and learn more about the study and how to enroll.

 

ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here for the chapter on Rare Lung Diseases.

Patient Fact Sheet Links

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one's personal health care provider.