Patient Voices 11

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Patient Voices 11

ATS Patient Voices is published by the American Thoracic Society Public Advisory Roundtable (ATS PAR). Since 2001, ATS PAR has been a core component of the Society and a mutually beneficial partnership wherein organizations that represent persons affected by respiratory diseases, illnesses requiring critical care, sleep-related disorders collaborate with the ATS to advance their shared educational, research, patient care, and advocacy goals.

The ATS strives to improve health worldwide by advancing research, clinical care, and public health in respiratory disease, critical illness, and sleep disorders. The roots of the ATS reach back to 1905, when a small group of physicians and researchers began sharing information about tuberculosis. Since then, it has grown into an international society with more than 15,000 members.

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ATS Patient Voices 11


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Greg Downey, MD, ATSF, ATS President and Karen Collishaw, CAE, ATS Chief Executive Officer

Chair's Message
Michele Manion, Chair, ATS PAR

Caitlyn & Elizabeth Hilton
Children's Interstitial Lung Disease

Conor & Carey Kauffman
Primary Ciliary Dyskinesia

Erica Courtenay-Mann

Jeanie Hanley
Cystic Fibrosis

Jon Hagstom
Alpha-1 Antitrypsin Deficiency

Pat Owens
Chronic Obstructive Pulmonary Disease 

Rebecca Stanfel

Sarah Jones

Thespena Panos

Courtney L. White, CAE, Senior Director, Patient Outreach, Equality and Engagement

Material on these pages is copyright © The American Thoracic Society. One copy of this text may be downloaded and printed free of charge for personal use or for non-commercial reproduction without an application for copyright permission, if such use complies with the following copyright conditions:

  • The text must not be altered in any way.
  • The copy must not be sold or used for profit.
  • A copy of the entire book or any portion of its contents must include a reproduction of the cover and © The American Thoracic Society.

For more information on the ATS Public Advisory Roundtable (PAR) or its activities, or to order hard copies of this book, please contact Mr. Courtney L. White at cwhite@thoracic.org or phone number 212-315-8640.


This publication includes stories of lung disease patients as told to the American Thoracic Society by the patients or their representatives. The views expressed in these stories do not reflect those of the ATS. The ATS makes no claim as to the efficacy of treatments, veracity of diagnoses, or competency of any physician or medical institution referenced herein.

©2017 by the American Thoracic Society.
All rights reserved.