International Society for Quality of Life Research (ISOQOL)
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Health-Related Quality of Life Research
Provides an overview of the goal and purpose of HRQOL research to include patient reported outcomes (PRO).
Patient Reported Outcomes Measurement Information System (PROMIS)
PROMIS is a system of measures of patient–reported health status for physical, mental, and social well–being.
The Comet (Core Outcome Measures in Effectiveness Trials) initiative is interested in the development and application of standardized sets of outcomes for specific conditions
Guidelines International Network
GEM database is web based tool that catalogs patient reported outcomes across diseases for research and clinical use.
Health Resources and Services Administration - Quality Improvement Methodology
Institute for Healthcare Improvement
Society of Behavioral Medicine (SBM)
SBM has created the premiere scientific forum for over 3,000 behavioral and biomedical researchers and clinicians to study the interactions of behavior, physiological and biochemical states, and morbidity and mortality.
American Psychological Association (APA)
The American Psychological Association is the world's largest organization of psychologists. The APA is working toward the advancement of psychology as a science, a profession, and a means of promoting human welfare.
Agency for Healthcare Research and Quality
AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work. AcademyHealth brings stakeholders together to address the current and future needs of an evolving health system, inform health policy, and translate evidence into action
International Society for Pharmacoeconomics and Outcomes Research (ISPOR)
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Medication Adherence and Persistence Special Interest Group
Develops good research practice recommendations for the conduct of medication adherence and treatment persistence research studies and will provide insight, through systematic reviews of the medication adherence literature, on interventions that improve medication adherence. -
Outcomes Research Guideline Index
A compendium of methods guidelines (as well as key textbooks and review papers) used in generating health care research evidence, synthesizing evidence, and using evidence in health care decision making.
Sample Size Calculations for Research Studies:
Accreditation Council for Graduate Medical Education (ACGME)
Resources to improve the quality of scientific writing and reporting of research studies.